The Make-A-Wish Foundation of Northeastern California and Northern Nevada invited Shylah and the whole family to their Wishing Center in Sacrament on Friday.
She was so excited.
Friday marked 662 days since that fateful day in October when we learned that Shylah had cancer. So, you can imagine how exciting and how meaningful Friday’s visit to Make-A-Wish’s Wishing Center was for all of us.
At this time last year, we were in a very very different place in her journey. In fact, here is a year over year picture of Shylah that I created after looking back at photos of Shylah at this time last year.
She has come a long way.
So, the purpose of Shylah’s meeting at the Wishing Center was to meet with Make-A-Wish staff so they could learn all about Shylah, her dreams, her favorite things and what she wishes for.
Wish Coordinator Michelle Cooper did a wonderful job interviewing Shylah. It was fun for us to watch and hear Shylah respond to all of the fun series of “get to know you” questions.
Ultimately, the goal was to try and determine what that one thing Shylah would just love to do, have, be or meet. That is how Make-A-Wish breaks down the possibilities of what’s wished for. You can do something, have something, be something or meet somebody. Michelle took Shylah through all four categories, letting Shylah write or draw her wishes on the Wishing Wall.
So, what did Shylah wish for?
Well, it is hard to say. At five years old, it was a bit challenging to get something clearly obvious from her. In fact, it will be interesting to see what Make-A-Wish comes up from with what they did gather from Shylah. I think it is safe to say that it will be princess related. Not only did Shylah dress up (she dresses herself), wearing her own princes dress, but when asked, “what does she want to be,” being a princess was the most definitive thing she said during the process.
The morning concluded with a wishing ceremony that was held in a special room. Shylah received a special necklace with a key that opened a door into the Wishing Room. In the Wishing Room was a… Wishing Well. With stars in the sky, music and mood lighting, Shylah was told to throw her wish into the well when she was ready. She took a moment and then tossed it in. Later that day she told Tarah that she was praying before tossing in her wish.
It was a magical experience and Shylah enjoyed every minute of it.
We aren’t exactly sure when we will hear back from the team at Make-A-Wish, but we will keep you posted. They do some pretty amazing things for lots of kids. Just this week one of the kids that goes to Kaden’s school, Sunrise Elementary, was granted his Wish. Six year old Ethan wished to be a garbage man (a wish “to be”) and boy did they treat him to an amazing day. I saw the police escort and news crews at the school on my way to work on Tuesday. Ethan was ABC News’ person of the week. Check out this great news clip on his wish: http://abcnews.go.com/Health/boy-cystic-fibrosis-lives-dream-garbage-man-day/story?id=40886915
Shylah is doing great. Her immune system is pretty good and she is tracking with a final treatment date sometime in February if all goes the way it should. In the meantime, she remains on the “maintenance phase” for treatment. She take chemo each day at home, but only has to go into the clinic once each month for her infusions. She’s a trooper and we are so so grateful for where she’s at. We even took a vacation this summer and headed to Sisters, OR. It was an amazing time of focused family time and enjoying every minute.
Thank you for your continued support and prayers for Shylah. It means a lot to us.