Today marks the one year anniversary of that fateful visit to the Emergency Room.
Technically, Tarah and Shylah arrived at the E.R. on October 6th, but it wasn’t until the 7th that we actually knew what was causing her to have such a hard time breathing.
This image of Shylah and Tarah is from some family photos that we took just before I left to Washington DC has been the wallpaper on my phone for the past year. This was the last picture of Shylah before we would understand what was causing her labored breathing. Shylah wasn’t feeling well in this photo, but we could not have imagined that in less than 48 hours later she would be diagnosed with lymphoma.
We would spend the rest of October at UC Davis Children’s Hospital.
One year later and Shylah is doing great!
Our faith, family and friends have helped lighten a very heavy load over the past year. For that, we are forever grateful. Shylah continues to respond to her treatment protocol. In fact, at Shylah’s most recent meeting with Dr. Pawar, her primary oncologist, Pawar asked Shylah if she was braiding her hair yet. She’s not quite there yet, but we loved hearing that sense of optimism and confidence.
She is on her way.
I love this video that Tarah captured of Shylah brushing her hair. Now that Shylah has entered her “maintenance phase” of her treatment, we’ve seen her hair, her energy and her mischievous ways return. With more energy, she’s off the couch, feeling better and we’ve even found ourselves saying, “where’s Shylah?” a lot lately. That, ironically, is a great feeling.
While I can’t imagine repeating a year like our last year, in many ways this next year will be an intense one. A year of “wait, watch and see.” While we want to believe the progress we’re seeing is indicative of an ensured outcome, we realize this isn’t the case. So, we continue to pray and are grateful for all of yours. It is more than we could ask for and has meant a lot to us throughout the past year.
Shylah’s maintenance phase consists of almost daily chemo from home and just once a month outpatient infusions at the cancer clinic. If everything goes according to plan, we should be staying out of the hospital during this phase.
In the meantime, Shylah’s enjoying her preschool, gaining more and more strength everyday and looking forward to braiding her hair. In fact, her new thing right now is her scooter. She’s scootering around the house like a crazy and we love it.
“You, Lord, are all I have, and you give me all I need; my future is in your hands.” ~ Psalm 16:5
Thank you all for joining us on this journey with Shylah. She is winning this battle.